Research & Statistics

The following are sources for information on cerebral palsy and other disability research:

  • Cerebral Palsy Research Registry – a multi-institutional collaborative effort whose primary mission is to improve our understanding of cerebral palsy by connecting interested families with researchers studying cerebral palsy and to create a tool to investigate surveillance data such as the natural aging process of persons with cerebral palsy, current interventions, environmental modifications and services utilized by persons with cerebral palsy.
  • National Institute on Neurological Disorders and Stroke NINDS conducts, fosters, coordinates and guides research on the causes, prevention, diagnosis, and treatment of neurological disorders and stroke, and supports basic research in related scientific areas.
  • U.S. Census Bureau Disability Statistics – serves as the leading source of quality data about the nation’s people and economy.
  • Disability Compendium – an annual publication of statistics on people with intellectual and developmental disabilities and government programs that serve the population with intellectual and developmental disabilities. Contains national and state level data.
  • Disability and Health Data – an interactive system developed by the National Center for Health Statistics that contains the most recent monitoring data for Healthy People 2010, including data on disability and secondary conditions.
  • National Survey of Children with Special Health Care Needs (CSHCN)        -provides information about CSHCN in all 50 States and the District of Columbia.
  • Individuals with Disabilities Education Act (IDEA) Data Center – provides public access to data about children and youth with intellectual and developmental disabilities served under the Individuals with Disabilities Education Act (IDEA) Parts B and C.
  • Directory of Clinical Trials – a registry of federally and privately supported clinical trials conducted in the United States and around the world. Visit clinical trials.gov for information about a trial’s purpose, who may participate, locations and phone numbers for more details.
  • World Report on Disability – produced jointly by WHO and the World Bank, the report suggests that more than a billion people in the world today experience disability. The report provides the  best available evidence about what works to overcome barriers to health care, rehabilitation, education, employment, and support services, and to create the environments which will enable people with intellectual and developmental disabilities to flourish.